“Helping others to live healthier lives”: Roles, Responsibilities, and Challenges of Expert Patients in Uganda

In Uganda, staff shortages have led many health facilities to shift tasks to expert patients (EPs), HIV positive clients who assist the health system to provide services to others. Little documentation exists about the role of EPs in HIV/AIDS service delivery. This work sought to ask: (i) How are EPs being used?; (ii) What organizational support is provided to EPs?; and (iii) What are the perceptions of EPs among those most directly affected by the EPs? Sixty-one semi-structured interviews were conducted at six health facilities participating in the USAID Health Care Improvement project’s (HCI) improvement collaboratives, as well as among key Ministry of Health informants. This short report describes the results of this descriptive, qualitative study.

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